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My name is Debbie and my beautiful daughter Carly has a great sense of humour and a huge smile. She loves to laugh, go shopping for clothes, spend time with her family and have a glass of wine at her local.


But Carly has very complex medical needs and without the care and attention she receives from Saint Francis Hospice, thanks to the support of people like you, her life would be very different.


Carly has never been able to speak and has always had learning and physical disabilities but she’s been able to lead a relatively independent life: walking, following instructions, dressing and feeding herself.


But in December 2013, Carly was diagnosed with a rare form of Neurogenerative Brain Iron Accumulation (NBIA). After years of waiting for her condition to be identified, I was absolutely devastated to be told that there is no treatment or cure for her illness and she wasn’t expected to live for more than four years.


Within just a few months, my beautiful daughter’s health deteriorated so rapidly that she lost the use of her legs, her body started to twist and she became totally dependent on us and her carers.


We were then advised to seek end of life care for Carly. My first thought was for Carly to be looked after by the wonderful team at Saint Francis Hospice.


Every moment of the time we have left to us is precious. We laugh, we smile, we cry and

giggle. We know Carly is cared for because of the support of kind people like you. Without

your support, these precious memories would be lost amid the bustle of caring for our darling daughter.


Can I ask you to give a donation this December so that we and other local families like us can spend as many special moments as possible this Christmas with the ones we love?



I also need your help to decorate the hospice for patients and their families as well as staff and volunteers over Christmas. When you make your online donation, please could you take a moment to write a few words of love and support in the space provided. It will then become part of a beautiful paper chain full of messages to decorate the hospice with for Christmas.


                               Carly with her mum Debbie,

                          sister Clare and nephews Louie and Tyler.



Please make Christmas special for patients and their families and the staff and volunteers who care for them. By donating to the Christmas Appeal you’ll be helping people like Carly, who has been diagnosed with a rare form of Neurogenerative Brain Iron Accumulation and her family were advised to seek end of life care for her. Without the care and attention Carly and her family receives from Saint Francis Hospice, her life would be very different.


Carly’s mum, Debbie, told us: "The staff here make it so easy for families like me to be with their loved ones in their final days. Sons, daughters, wives and husbands can show their love and say their goodbyes. That's so precious and important."