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Supporting young people living with dementia

Young people living with dementia and their carers came together to share experiences and find out more about services available to them. 
Admiral team together with team from Saint Francis Hospice (rs (cropped)
Saint Francis Hospice was delighted to host the event, which was organised by Havering Memory Team at North East London NHS Foundation Trust (NELFT) and held at The Pepperell Education Centre in Havering-atte-Bower on Wednesday (April 27).

"It was a very good evening and the feedback we have had from carers was very positive and they would like to do it again," said Sam Ponting, a dementia specialist Admiral nurse at NELFT, which is based at the Victoria Centre in Romford.

"There is a gap for younger people with dementia and their carers as there are very few services especially for them. 

"We wanted to get all the carers together and give them the opportunity to meet, chat and share ideas."

During the evening Jan Scott, the hospice's Service Development Manager, told carers about the charity's new free Orangeline telephone service, which has recently been launched and is aimed at helping people to feel less lonely and isolated.

It is confidential and managed by specially trained staff and volunteers who are there to help with information and signposting to local services, links to other callers via groups or even just a friendly chat.

Julia Bryan, a Clinical Nurse Specialist with the hospice's Specialist Community and Crisis Support Team, said, "None of the people in this group require palliative care services at the moment but they need support.

"Widening the access for carers and people with dementia is the only way forward.

"When people are at a different stage of their illness and they need our support, the patients and families will know us and have more confidence in us." 

Sam also thanked the hospice for supporting the event and added, "Without the support of the hospice we would not be here and we really appreciate, not just the use of the venue, but the staff giving up their time for us." 

Admiral team together with team from Saint Francis Hospice (rs
Team from Havering Memory Team at NELFT and staff from Saint Francis Hospice